Not bad news. Not great news. Just moving to the next step.

Fwiends.
I have so much to tell you all.
I mean, it's only been like a week since my last post, but a lot can happen in a week.

Well, my health has gotten really bad again. my body has gone into complete rejection mode and its awful and painful. It's been really rough.

My doctor appointment to talk about all the tests I went through was originally scheduled on February 14, but earlier this month they called and asked to move it up. So yesterday, January 28, my mom and I headed up to Sioux Falls once more to get me some answers.

Now friends, the anxiety that filled us was unsettling.
We were preparing ourselves to hear one of two things; the first being that they couldn't see anything and that they wouldn't know what to do for me. Second being that there was something actually seriously wrong, but that there was a name to it and that there was a treatment.

In my mind, I had prepared myself for things as bad as cancer. Because at this point, it would at least be SOMETHING- some sort of explanation, right? I had decided I would rather it be something bad, with a name, with a treatment, than to have them tell me they were clueless. But either way, whatever the outcome, I just wanted to be able to better His kingdom.

Like I said before, we were prepared for both answers, but we didn't get either of them.

That's right. neither of them.

So what did I find out?

Well, my EEG showed signs of NO seizures! WOOT WOOT! That way I get to keep my license. PRAISE THE LORD!!
But it did show that I, obviously, have POTS. No big surprise there. I was also diagnosed with severe insomnia. Again, no big surprise.

Second, since I don't react well to almost all medication, we're trying something new.

I am starting regular infusions. What this means is that they're giving me a big ol' cocktail (mix of lots of drugs) and giving it to me through a 4 hour long IV.
I got my first big infusion today.
It was interesting, to say the least. I don't feel a ton of relief from it yet, but my nurse told me that it usually takes a little bit to take full effect.

THIRD OF ALL, I'm getting a spinal tap.
*insert cringe here*

I, being the incredibly intelligent person that I am, decided to YouTube exactly what a spinal tap was a while back.
Worst. Decision. Ever.
I really don't have an issue with needles at all but it really was probably not one of my best ideas to watch that.
Anyhoo, I will be undergoing that in the near future, also.
They want to see how much pressure is around my brain, and in the process, hopefully release some of that pressure through the spinal tap.

My doctor also has decided that if my infusions still aren't ridding me of the severe migraine I've had for at least 5 years straight, the next step would be to do injections into the base of my skull. Sounds like fun, huh?

So.. yeah!

Not bad news.
Not great news.
Just moving to the next step.

Still praising the Lord for His provision and gift of friends to love on me and pray with me through this all.

In other news, my family, along with myself, just came down with a really nasty cold. Ick.
ALSO, we close on out new house this upcoming Friday. WOOT WOOT. Yay for new beginnings.

Again, lots of prayers needed for the upcoming months with my health and my family's transitions into new seasons of life.


xoxo,
g.p.